Friday, 5 December 2008
Keep safe works (kind of)
Kaydin came down with a cold on tuesday and i have come to the conclusion that when Kaydin gets a cold he likes it all to be over and done with in 2 days which means tues and weds were coughing, high temps, vomiting (in my bed weds night gross!) andthen thurs morning he was fine just a lingering cough. Weds morning though he spent 5 mins just bawling his eyes out and when i finally calmed him down i asked why he was crying he replied "i was sad" i asked "why were you sad?" He replied "i had a 'no' feeling." I'm thinking this is good he's remembering what he was taught, i then asked what made you feel like that to which he murmed "(something) your mum" "sorry what was that" i asked only to hear "(something) your mum" so i gently said "sorry bub im not sure what your saying, he then looks at me and yells "TELL YOUR MUM!" which is of course the next step the keep safe teaches them but didn't really answer my question so i simply said "that's right you do tell your mum" and changed the subject
Wednesday, 26 November 2008
Keep Safe Programme for Kids
Today was the last dy in a 5 week course Kaydin has been doing at playcentre called a keep safe programme.Every wednesday for 5 weeks the kids come to listen to a lady talk to them about keeping safe. This was such a good course for both kaydin and i. They sung songs, the lady running it dressed up as different characters and the puppet toby was a regular. The kids learnt about differences between boys and girls, parts of their bodies, ok touching and not ok, yes and no feelings, telling safe adults. Kaydin took a cple of visits before he felt comfortable enuf to get involved in the questions, dancing, singing aspects. Kaydin now knows to say "Stop it! i don't like it!" and to tell his mum and other safe adults if they don't stop. it was also good for parents because it gives us a base to build upon, it gives language and ideas on how to bring these subjects up and the confidence to talk about them with our children.
So hopefully this was a great start to introducing not only safety to kaydin but also to the both of us being comfortable talking about things in years to come!
So hopefully this was a great start to introducing not only safety to kaydin but also to the both of us being comfortable talking about things in years to come!
Thursday, 6 November 2008
Recent trip to Geneticist at Starship
Last week Kaydin had an apointment with a Geneticist at Starship hospital. His cardiologist (he has annual check ups) referred him as she suspected that he may have something called 'Noonan Syndrome'
We arrived at the Geneticist who was very friendly and even remembered us from when Kaydin was 3 months old (he was the one who caught Kaydins heart murmur and droopy eyelid). After examining Kaydin he told us that there are 2 similar conditions which he may have, 1 is 'Noonan Syndrome' which doesn't have any major prognosis other than his heart condition (pulminary stenosis), infertility (due to undescended testicles), hearing problems and learning difficulties. The 2nd one is 'Neurofibromatosis 1 (NF1)'which in most cases is still fairly benign but things like his heart condition, cafe-au-lait (coffee spots), Lisch nodes on eyes, tumors (mainly on the spinal nerves, speech and learningDisabilities, ADHD plus a whole lot more. The best website i found while researching was www.ninds.nih.gov/disorders/neurofibromatosis/detail_neurofibromatosis.htm
Kaydin is being referred to an audiologist at Starship to test his hearing. He is also being referred to an opthomologist at Greenlane to look at his eyes especially for the Lisch nodes and possible tumors. Until those tests are done there won't be a confirmed diagnosis of either one and still possibly not til after he is six. The Geneticist is going to see him anually until then either way. Will update again after hes had his apointments.
We arrived at the Geneticist who was very friendly and even remembered us from when Kaydin was 3 months old (he was the one who caught Kaydins heart murmur and droopy eyelid). After examining Kaydin he told us that there are 2 similar conditions which he may have, 1 is 'Noonan Syndrome' which doesn't have any major prognosis other than his heart condition (pulminary stenosis), infertility (due to undescended testicles), hearing problems and learning difficulties. The 2nd one is 'Neurofibromatosis 1 (NF1)'which in most cases is still fairly benign but things like his heart condition, cafe-au-lait (coffee spots), Lisch nodes on eyes, tumors (mainly on the spinal nerves, speech and learningDisabilities, ADHD plus a whole lot more. The best website i found while researching was www.ninds.nih.gov/disorders/neurofibromatosis/detail_neurofibromatosis.htm
Kaydin is being referred to an audiologist at Starship to test his hearing. He is also being referred to an opthomologist at Greenlane to look at his eyes especially for the Lisch nodes and possible tumors. Until those tests are done there won't be a confirmed diagnosis of either one and still possibly not til after he is six. The Geneticist is going to see him anually until then either way. Will update again after hes had his apointments.
Tuesday, 1 July 2008
Birthday Party
Recently Kaydin celebrated his birthday.Because he is really into 'Ben10' (an animated series about a boy that can turn into aliens) we had a Space themed birthday. It went really well, Kaydin dressed all in green and then had his face painted green as well. we had fire alien, many 3 aliens with masks, 2 aliens with tinfoil head bits and a princess alien. Kaydin had great fun that day. The kids all glowing bracelets (like glowsticks but able to be put in a circle,a pack of 15 for $2) and they won spiders and lollipops in the pass the parcel. Kaydins cake was a spaceship which didn't work out aswell as i would have liked but the kids liked it, and they loved the green jelly!
Next year however i think Kaydin's dad can have a turn organising his birthday, although i have said that the past 2 yrs so imnot sure how likely that will happen :)
Next year however i think Kaydin's dad can have a turn organising his birthday, although i have said that the past 2 yrs so imnot sure how likely that will happen :)
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